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OPHN1 Foundation

Our mission is to improve the lives of individuals and families affected by OPHN1 variants by advancing research toward treatments and a cure, growing awareness, and strengthening our community.

OPHN1 Foundation is a nonprofit, tax-exempt 501(c)(3) organization. Donations are tax-deductible. EIN: 41-4116522

OPHN1 Foundation welcomes and values all individuals and families. We are committed to creating a respectful and inclusive community where everyone feels seen, heard, and supported.

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