Get Involved
Ways to Get Involved with OPHN1
We need your help. By working together, families, clinicians, researchers, and supporters can build knowledge, strengthen care, and accelerate progress toward treatments. Choose a path to make an impact today.
You can get involved with OPHN1 in many ways. Support research, share resources, volunteer your time, connect families, and help raise awareness. Every contribution matters, and every action helps move the community forward.
Learn more About Us, connect with Families, or explore The Science. You can also support our work directly through our Donation Page.
Volunteer With Us
From graphic design to family outreach, there are many ways to lend your talents – whether you can give an hour a month or take on a bigger role. Join our team of volunteers making a difference.
Join the Mailing List
Be the first to know about research updates, community events, and ways to get involved. Subscribe and stay connected with our community.